Another page…

Wednesday I turned in my letter of resignation to the post office with the intent of my final day being Monday.  Unfortunately, the postal truck must have had a grudge against me and decided to give me an injury to my elbow today and the doc’s at the urgent care said it needs rest for at least a week and a brace to help. Tendinitis and elbow strain from the sliding truck door lock sticking. It’s disappointing to me because I don’t like not fulfilling my commitments but at the same time, I’m not entirely unhappy because I get to relax tomorrow and Sunday instead of be there before 7am and come home at 6pm, exhausted and stressed.  Had I held a career position that was full time with benefits, I would have fought through it all to stay.   I liked every person I worked with in the post office and have not one negative word to say about them. They were all very supportive, friendly and helpful. The postmaster stated I was well liked and would happily take me back if i were to apply again for a position with them.

My new employer is The UPS Store. The hours will be just about full time. Its an inside job not working in the weather. Benefits after a few months and never any hours on Sunday. I will work an occasional Saturday (one a month, maybe two) but the owner and manager both know about my SCA hobby and know I have teenage boys and they understand I need weekends on occasion. Most of my hours will be during the week.  This makes me happy. Ryan too.  This weekend I will get some gentle arting done.  Art that will minimize the arm lifting/bending.  Must remember to turn off my early bird weekend alarm….or delete it completely.

Just another page in my book of life…the rest is still unwritten. (yes, I quoted a song..no groaning.) 😉

 

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Floundering…flop, flop

Have you ever felt like you’re in a large room of people and things and you’re spinning around with no direction in mind…no one specific person to talk to…no idea what to do? Feel like a fish out of water and your flopping around wondering how to get back to the comfort and safety of the glistening life saving water?   That is what I have been feeling of late.  For a year and a half almost my focus was on my son and all that he needed to get well. Now he is well. Shortly after my last post in July, my old employer faked the business closing so he could lay me off with little guilt on his part. Needless to say the business is still open and he fessed up to the truth of it all to my husband and said he will always need him at the company and kept him. While I miss the stability of the job and spending the days with my husband I do not miss the stress of working for that man.  Since then, I have felt as I have described above. No direction. On a whim, I applied for a job with the post office as rural route carrier. Sent in my resume, passed the online assessments, went in for an in person assessment test and then was called in for an in person interview. When we interviewed, we were then told it was only guaranteed 1 day a week to cover the day off of the career carrier we were subbing for, which was Saturday or Monday. We were not considered career so we weren’t given benefits of any type.  We were also only allowed to work for them because if they called to have us come in other than that specified day off, we had to set them as a priority.  Everyone said this was a great opportunity, a foot in the door. So I said yes.  I went through all the training and started late October fully.  That’s when it went south but as much as I could go on, I wont. Needless to say, it isn’t anything i was told it would be. I don’t see or spend time with my family now because its every weekend and I come home exhausted and practically fall asleep on the couch at 7:30. I haven’t been to an SCA event since early October and unless I find other employment, won’t be at one for a couple months.  I have been searching the post office web site for different jobs to apply for but none are available that I want…or they are two hours away in the city.

I was watching Julie&Julia last night and realized that I felt a lot like Julie in the movie. So many things that I have wanted to do in my life, with my life and just…haven’t. I have a degree in Art and can’t find a thing to do with it for employment. I feel like I chose poorly when I decided on what to pursue for a degree.  I want to desperately work professionally as an embroideress but there are no jobs locally that I have found so far. I see these fabulous works that women make but those jobs seem to be over seas in England or Italy where the fashion trade originates from or where embroidery is still needed for museums and royalty. The Royal School of Needlework in England is a dream to visit..hell I would love to have attended there. Nothing here in po-dunk Port Ewen.  I did come to the decision last night that I was going to attempt to revive my joy of cooking that I once had by digging out my copy of Mastering the Art of French Cooking and trying my hand at a few recipes. I will not be killing myself and doing the whole book in a year as she did..I don’t have the budget for that, but a recipe once a week or every other week wouldn’t be bad.

I guess I’m in a rut. A deep one at that. I want to do it all but have no gumption to get up and start. Admittedly it’s been like this for a while. Everyone tells me I’m so strong but quite honestly I feel anything but strong. I feel weak and sad. Also scatterbrained and without focus or direction. What i want right now in life is to have a good job that pays fairly descent, that lets me have weekends with friends and family to do fun things and isn’t real stressful and doesnt cause my arthritis to flare up daily. Is that so much to ask? I have skills in so many areas and feel like they never quite seem to fit any one thing out there.  Dear powers that be….HELP!

Wishes…

So, I have this wish board. I read about it a while back, about putting out to the universe what you want and need and if your intentions are good, things would happen. I figured, what the hell and decided to make one up. It’s comprised of pictures of things that I want in my life…things I wish for.  Over the years the items have changed when surprisingly they come to fruition. A few of the pictures I had taken down in a fashion of giving up on it. Oddly, they came about shortly after. Believe it or not a picture of Nathan Fillian was on the board and when I took it down, a couple months later I met him at NYC Comic Con.  That was pretty cool.

I have been down a bit lately, still in my hermit phase after all the treatments and such (Yay, he’s cancer free!!) so I decided to do a little updating to my board.  My biggest thing I really want is a job change. My therapist says I am in a toxic environment at my place of business and that the owner is verbally abusive.  He isn’t there very often but when he does, if business is slow, he can be unpleasant to say the least. He never speaks badly when the other staff is around but if it is just he and I in the room, there are insults, snide and derogatory remarks and threats of job loss. I have looked for other positions but at the same time, the couple places I interviewed at aren’t willing to be obliging of the dr visits I still have to take my son to for his post treatment check ups.  So the couple places I interviewed at have not called back or sent notification that they position was given to another interviewee.  It’s causing major stress and disagreements within the family and with my spouse especially. Its hard to not take the owners remarks to heart and to let them roll off of me. I have never been able to do that. i was not built that way.  I’m weary and tired. My dream is to have a job where my crafts bring in an income to compare to where i work.  Or to have some type of work from home position that will do that as well.  I wouldn’t mind being a stay at home Mom again either or have the position to work from home.

The things on my wish board are obvious and don’t need explaining, but it’s a look into what I want in life. Goals. Dreams. Wishes.   Hell, my dream to visit Italy is coming true in October thanks to a wonderful sister in law. (love you Gia!) I am still in shock over that one..delightful shock.

Well, scouts time.

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New Project….TUG BOAT!

So, a year ago I put myself on a list to paint a tug boat for my town’s tug boat trail.  Seems as if every town has some icon that represents them. When I lived in Allentown, I recall horses or mules. I believe Kingston has Peacocks.  In our case, a tug boat as we have several ports….plus..Port Ewen is the name of my town.  Last week I got a call from the township asking if I still wanted to paint one and I of course said yes. I pick it up today.  Here is a Facebook link for the Tug Boat Trail:

www.facebook.com/pg/tugboattrail/about/?ref=page_internal 

They request that you paint it in acrylic paints and they will clear coat it. They will be posted around the town and then towards the fall, they are auctioned off.  I am going to go to Joann’s and get a supply of fresh acrylic paints (lucky me I was just texted a 20% off entire order digital coupon) and brushes to do the job.  My dilemma is what do I want to paint it like?  I have had a suggestion of a Childhood Cancer theme as a tribute to my personal experiences with it. I have also had the idea of making it look similar to a viking ship, but am trying to figure out how to make that work. Since the viking ship landed here earlier this year, I thought that would be a nice tribute and idea. Ryan is going to help me brainstorm. Since his drawing skills surpass mine, he will draw/sketch and I will paint.  When I pick it up this afternoon, I will post a picture of the blank canvas.

I am very excited about this. Its been years since I have painted anything other than a couple of ceramics at a local class. I will be happy when I settle on a design and set to it.

 

Edit: Here is the blank canvas…so to speak.

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What a Long Strange Year It’s Been…

I am a jumble of emotions today. I am so happy for Kyle as it’s his last day of radiation and so sad I cant be there so see him ring the bell of completion. Tonight, i get to hold him in my arms again and have him home and in a couple more weeks…permanently. I have also never been more grateful for the speed at which a year can fly by. Also, I will never take another day for granted. I am making a list of things to do when he is completely done with all this: Travel, day trips, new experiences, etc. I will enjoy every second I have on this earth with my family from now on as much as I can. I’m sorry it took this type of situation to be such a wake up call, but I have heard it and will make the most of the rest of my days here.
I am also so thankful for the people in my life. My friends, my family and even the strangers that have heard of what we’ve been going through and have offered prayers or sent written support. There are so many to list that have been supportive, kind, generous and loving.
Thank you Doug for being a great father and taking such wonderful care of him. Thank you Kerry, Sherri, Jessica, Elizabeth, Cherie, Christin, TammyLynn, Beckey, Susan, Susan, Sue, Sarah, Maria, Maria(and so many more I haven’t listed) for being there when I was a sobbing mess and needed to be held up or bitch-slapped virtually (guess who that was) and told to stay positive and that he would beat this.
Thank you Mary for talking to me that day and giving me that hope I needed to grasp onto. That assurance I needed to hear. That has kept me grounded this whole time.
Thank you Leo for being so understanding in all this and the loving son and little brother. You always have a hug for me when I was sad and always had a way to make me smile. Thank you for being so encouraging to your brother and helping him when he needed it.
Thank you Sandra for coming up and helping with hospital stays and phone calls. Thank you Roger and Colleen for all you have done too. I love you all.
Thank you to my Ryan for being my best friend and loving husband and always holding me when i collapsed and broke down through all this, all the while reassuring me he would be fine and he was strong and would get through this. Giving me strength when I needed it so desperately. Making me laugh and smile when i felt like i couldn’t. I love you dearly!
Most of all, Thank you Kyle. You have been so strong through all this and so brave. Somehow you always seemed to have a smile even when you felt like utter crap. I will make this all up to you, all that you missed this past year, I promise. Thank you for being so strong and wonderful..even you told me “i’m fine..Ill be fine!” when i was sad and scared.
It’s not all done yet but we only have a few weeks till it’s all done. Thank you God, thank you so much.

Faith in humanity, restored!

In a world where everyone keeps their heads down and minds their own business, the kindness of strangers still leaves me in awe and can make me cry with such happiness and gratitude, it makes me feel better and have hope for this world we live in.

We were out of milk and a few other things. Made a stop to Shoprite to pick things up for home (OMG how could I have spent that much for so few groceries!?!) and as i was loading my sacks of groceries into the trunk, another car pulled up two spaces away. I walked around front of the car with my empty cart and offered it to the two ladies saying it rolled well. “Rolls well, huh? Sure we’ll take it!” they said laughing.  The one woman then complimented me on my hair coloring and asked where I’d gotten it done and what was the inspiration for it?  I told her about Kyle and what he was going through and how he’d chosen a blue wig to wear and that if he wanted me to do the same I’d shave my head and wear a wig too, but he declined it and said he just wanted me to dye my hair and thus is the reason for my colorful do.

The two ladies looked at me with their hands over their mouths. One of them comes to me and gives me a hug and says “We never come to Shoprite. We usually shop other places but decided to come here today and now we know why. We were meant to come here and meet you. We will say prayers for your son and put him on our prayer chain.”  I was so moved by the kindness of these women, I called my husband and told him on the way home about what happened and it made me cry. (as it is again as I am typing this)  Thank you ladies for restoring my faith in humanity. Bless you both!

 

Exhaustion, Depression and Stress..OH MY!

I opened Facebook this morning and saw a stunning picture of friends in front of glorious scenery on their vacation abroad and while I was so happy for them that they saw such wondrous views and had these fabulous experiences and OH MY GLOB that waterfall was just breathtaking….I burst into tears.  Not really the reaction I was expecting to come from myself. Quite shocking actually. Admittedly, I was envious of them. I adore them completely, I have no ill feelings in even the slightest towards them and their various trips they take I live vicariously through their pictures grinning from ear to ear and vowing I will go there someday, but I am envious.  I am finding a lot of late, that i am envious of what everyone is doing, the lives their living. They are living…..LIVING!! I feel like I am barely surviving each day and each day it is a struggle to do that.

The old saying that goes something along the lines of three steps forward, two steps back (or however it goes) I think is going to be my new mantra. When I feel like I get a handle on things, something trips me up or shoves me back a bit. This morning started with challenges (like waking at 3 am and not getting back to sleep) and try as I might to not let it set my mood for the day, it did.  It started with something as small as my son not brushing his teeth…for several days because he never unpacked his overnight bag from a sleep over. I mean..come on!! Yea, I know..he’s 12 and I should know better. I guess I underestimate my kids in hoping they will do basic hygiene every day without me having to remind them to do it. *smacks forehead* How silly of me!  Lesson learned: 12 year old boys don’t care nor think about these things. (Note to self: Start taping reminder notes to their mirrors and computer screens) I became very angry over this situation. Probably more so than I should have. I yelled. He cringed. The puppy cowered. I stormed out to go to work feeling like worse Mom in the world.

Now, today was to be the first therapy appointments for he and I. Being majorly stressed at all that has happened and is happening in our lives of late, I was very much looking forward to it. I should have known that it wouldn’t be that easy, it never seems to be in my life.  Mind you, i worked for a couple weeks with a case worker through my insurance company to find the right therapist that would fit for both my son and I. They took my insurance as well.  This morning at 8:30, the therapy office called to tell me my son’s insurance was canceled at the end of January and they couldn’t find me in the system. I felt my heart skip and start to beat faster and I think my eye even started to twitch a little.  After a call to the insurance company to verify we were still there and active, which we were, I called the office back. It was then they said they did find us, but, as it turns out, they don’t take the plan type that we have with said insurance company. However, they could set up a private pay price so that I could keep the appointment.  At this point I can now feel my pulse in my neck and temples and the angry tears started brimming in my eyes and I believe the next words I said were “Are you fucking kidding me!?” came out of my mouth and the lady uttered an oh my seemingly shocked to her foundations that I had the audacity to swear. Can someone please tell me why these offices can not check out the insurance eligibility prior to the few hours before the appointment?!  I promptly told her to cancel the appointments as I would not be keeping them since they didn’t take our policy and I certainly don’t have the funds to pay for their “private pay” fee.   Weeks communicating with a case worker named Johanna at our insurance company via email and phone calls and she couldn’t even tell that this place didn’t take my plan type?! Isn’t that this case worker’s job? To confirm these little details before saying Go ahead and make an appointment?  I called the insurance company back yet again and well, she couldn’t answer my call right now and would get back to me.  Right after that, the hospital calls to say I have to come back down (after I just left there yesterday afternoon from being there this whole weekend) so that they can train me on how to run a pump for an NG tube for feedings.  I was there..for four days, and not once could they have shown me this while I was there and they were doing them? After being told earlier that a visiting nurse would come teach me at my home, I am now told I HAVE to come back down and do a 3 hour drive because they do not trust outside visiting nurses. There is now a red haze on the edges of my vision.

I feel utterly beaten down, deflated and broken. Thankfully I am at work alone right now because I sat at my desk here and bawled in complete frustration and anger for quite some time. When that happens, the mind wanders through the strangest things and you reflect on a hundred things that have nothing to do with the insurance company but only further you’re growing depression over the situation and what life has thrown at you. My brain decided to reflect on my missed vacations due to health reasons with my husband last year..then this year with my oldest son’s..not to mention caused us to post pone our wedding and cancel a honeymoon all together. It reminds me of how poorly I feel i am handling my life right now which consists of work, trying to maintain the house and the rotating hospital stays for treatment or pop up fevers and try to raise another child who is also dealing with the stresses of a sibling with a major illness and acting out accordingly. Oh yea..and a puppy who seems to be have an endless amount of poop and always has accidents no matter how many times we take him outside to do his business. He reminds me of one of those play-doh extrusion toys!   In one end and out the other almost immediately! My brain decided to remind me of just how much life I was missing and all the fun I was not having. All the life we are not living.  I feel like the most selfish person in the world right now. I feel like I should be able to push all this aside and be that good strong person and focus entirely on his treatment and be that positive, uplifting supermom i should be. I am not. I feel like a failure on top of the extreme selfishness.

I know..this isn’t forever. I have had multiple people state that to me to try to help me to see the light at the end of the tunnel. FYI: It doesn’t help.  I know that when he is cured and back to his old self this will be something to reflect on as a struggle we got through and move in with our life.  But that time is not here yet. There are still months ahead of us in going through his treatment to reach that end goal. Hard, tough, stressful, painful months. We are barely half way in all this and I pray I can make it all the way through mentally and hell..even physically. I am trying to take it one day at a time so as not to feel overwhelmed, which is a monstrous feet in of itself. I have a feeling I will end up on some type of anxiety/stress medication and almost definitely something for blood pressure before the end of all this. I am fried.

I did warn you at the creation of this blog it wasn’t going to be all rainbows and unicorns and sunflowers, right? Right?!